My daughter has juvenile Huntington’s Disease (she’s a teenager) she can’t do most of the things she used to be able to do, she experiences a lot of involuntary movements and is unable to walk properly, she’s lost a lot of weight and the mental awareness is starting to go down hill. She’s started to not be able to control her bladder anymore and has started to have accidents all the time especially at night, what should I do to deal with this and to be able to take her out places during the day?
Hon, the best thing for your daughter is depends. This is an adult pad that works like a diaper. It wil help keep her dry and comfortable with no embarrasing leaks. You’ll have to help her change this or at least remind her about it, but it does work. Hope this helps!
November 1st, 2009 at 6:48 am
this answer is a serious one so please do not think i am making fun. one thing you can do is get disposable diapers/underwear in the incontinence section of the pharmacy or market. also her neurologist may be able to give her something to control her bladder without the use of disposable underwear. and if you are not satisfied with the answers you get you can always get a second opinion from another neurologist.
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November 1st, 2009 at 6:58 am
Hon, the best thing for your daughter is depends. This is an adult pad that works like a diaper. It wil help keep her dry and comfortable with no embarrasing leaks. You’ll have to help her change this or at least remind her about it, but it does work. Hope this helps!
References :
November 1st, 2009 at 7:20 am
I would say get her one of the adult size disposable diapers. That way she won’t have an embarrassing accident and can enjoy her time out with you.
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November 1st, 2009 at 7:29 am
You should really take her in to see the doctor. I’m not an expert in Huntington’s disease, although I do have some experience with incontinence. I therefore don’t know whether incontinence is a common manifestation of worsening HD. However, there are generally treatments available for incontinence, and the exact type of treatment will depend on the type of incontinence she has (hence the doctor’s visit).
If her bladder fills without her awareness and then empties by reflex, she may benefit from intermittent catheterization. I know that might be difficult and awkward, but it may free the two of you up to be able to go out for a few hours.
If she has urge incontinence/overactive bladder symptoms (i.e., sudden loss of large amounts of urine), there are medications that may be able to help. These are sometimes also helpful with bedwetting. There may be some neurologic side-effects, though, so it would be important to discuss it with the neurologist.
Finally, simple things like careful fluid regulation and timed bathroom visits may really help.
I would think that most people her age would find these measures more comfortable than wearing adult diapers. There are thin pads she could wear as an "insurance policy", but it may not even be necessary.
Good luck!
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